Why October is Noah’s month

Noah

Noah is the hydration specialist for his high school football team.

October is Noah’s month. Actually, every month is Noah’s month! My son, Noah, is 17, a high school junior who loves football and a Green Bay Packers fan (his favorite person on the team is the equipment manager, Red, who has great energy and inspired Noah to help whenever there is something to do).

Noah is the big brother to two sisters. He calls our dog the other “guy” in the house to keep it even. He loves music and reruns of Full House. He uses his iPad to connect with friends and family on Facebook and Skype, does handstands underwater, sings like he’s underwater even when he’s not and happens to have Down syndrome. So it’s his month …Continue reading →

Celebrating life when your family is affected by childhood cancer

Hollyn

Hollyn is celebrating life.

When your family is affected by childhood cancer, you celebrate life every day. Our family recently stepped up the celebration with an amazing group of people. We attended the annual Celebrate Life event at Children’s Hospital of Wisconsin. It always amazes me how many kids are in this battle and how many are just out of treatment.

It was great to see my daughter Hollyn (who was diagnosed with cancer in 2005) and everyone else at the event get a lot of “wows” from the staff. She really is growing up. Her hair is longer, but she’s still the same girl many of them met seven years ago. I hope her warm smile and hugs never change.

There always is great music at this event, and …Continue reading →

Why participating in Briggs & Al’s Run & Walk has become a passion for my family

Jack Palmen

Jack graduated from high school in June 2011.

In July 2008, our lives changed forever. My seemingly perfectly healthy 15-year-old son, Jack was flown by Flight for Life to Children’s Hospital of Wisconsin. He had a ruptured brain arteriovenous malformation and was rushed into surgery. The condition happens when arteries in the brain connect directly to nearby veins without having the normal vessels (capillaries) between them. I believe he would not be alive today if not for the doctors, surgeons and staff at Children’s Hospital.

The care Jack received was incredible, and the support and compassion shown to our family was off the charts. When Jack arrived at Children’s Hospital, he only had a 4 percent chance of …Continue reading →

Honoring Alyssa’s spirit by supporting Children’s Hospital of Wisconsin

With four healthy boys running around we never gave a second thought to Children’s Hospital of Wisconsin. Then our fifth child and only girl, Alyssa, came along. She brightened our world in countless ways. Not long after her birth, it became clear that Alyssa had some unique health issues. Through her, we discovered how special Children’s Hospital is and how fortunate we are to have it in our backyard.

Alyssa was born with clubfeet in September 1988. By the time she was 6 months old, she was diagnosed with Marfan syndrome, a genetic connective tissue disorder that affects …Continue reading →

Why we support Briggs & Al’s Run & Walk for future patients and families

Lucas

Lucas was born with Tetralogy of Fallot.

Raising money for Briggs & Al’s Run & Walk for Children’s Hospital is important to my family because it allows us to help other families benefit from the best medical care.

My name is Amy Randall. In April 2011, our son, Lucas, was born with Tetralogy of Fallot, a congenital heart defect. This diagnosis rocked our world. We soon learned congenital heart defects are the most common type of birth defect.

Days after Lucas’s birth, we met cardiologist Margaret Samyn, MD, in the Herma Heart Center at Children’s Hospital of Wisconsin. My husband and I were worried and in shock. Dr. Samyn …Continue reading →

Navigating the twists and turns: How we helped our daughter manage scoliosis

It was nearly three years ago, but I still remember the day. Our pediatrician’s nurse called to tell me that Mary, my oldest daughter, had scoliosis. I remember feeling scared and very emotional. I actually was in tears at one point. It was hard to imagine what the future might hold.

Fast forward to 2012, and I realize that call was the beginning of a rollercoaster ride. Now I really don’t like rollercoasters, but thanks to the specialists at Children’s Hospital of Wisconsin, the ride actually has been OK. As a family, we’ve learned to handle the ups …Continue reading →

We scream for ice cream

Thursday, July 26, is Miracle Treat Day, and proceeds from Blizzard sales at participating Dairy Queen stores will benefit Children’s Hospital of Wisconsin.

Girl eating Blizzard

Children’s Hospital champion Brea enjoying her Blizzard on Miracle Treat Day 2011.

My name is Jerry Schiefelbein. I’m the operator of three local Dairy Queen stores. I’m asking you to join me for Miracle Treat Day which supports Children’s Miracle Network Hospitals across the country.

I’m happy to participate in this great event to help out a hospital that has helped my family. Our community is lucky to have one of the nation’s top children’s hospitals. My daughter, Nicole, was a patient at Children’s for 10 years with type-1 diabetes. The care and education she and our family received was second to none. She is doing great to this day. We are very appreciative to the doctors, nurses and support staff for …Continue reading →

My advice for kids living with scoliosis: Just be yourself

My name is Mary, and I have scoliosis. I was diagnosed with it a few years ago. I wear my brace during the day now, but I used to wear one at night. Wearing a brace has affected my life in many ways, but don’t worry. You can still be the same you even with scoliosis.

I’m 14 years old and a freshman at Hampshire High School, in Hampshire, Ill. Let me tell you a little about myself. I love to read, and I love cats. I have one cat named C.C., and she is the cutest thing ever!

During this past school year, I got a daytime brace. Don’t be afraid to tell your teachers and …Continue reading →

Why one Kenosha girl is writing a letter to Michelle Obama on behalf of every child in Wisconsin

No one can tell the stories of children’s hospitals better than the patients and families that we serve. Every year, the Children’s Hospital Association hosts Family Advocacy Day in Washington, D.C.

This year, Claire Bevec, from Kenosha, Wis., is taking her story to Washington, D.C. She will join nearly 30 other child patients and their families from across the country to ask Congress to protect health care for children. National health care programs our kids rely …Continue reading →

Teen patients spend an Evening with Stars at prom

Prom night at Children’s Hospital of Wisconsin

Prom night at Children’s Hospital of Wisconsin.

An Evening with the Stars was much more than just prom night at Children’s Hospital of Wisconsin. As a Teen Advisory Council member for Children’s, prom was about being able to give back to the community.

Seeing the patients of Children’s smile and laugh is something words can never describe. The thought that something we do could make such a large impact …Continue reading →