We’re heading to Capitol Hill for Family Advocacy Day

Claire and Linda

Claire and Linda Bevec

On behalf of Children’s Hospital of Wisconsin our family will participate in the Children’s Hospital Association’s eighth annual Family Advocacy Day in Washington, D.C. next month.

Family Advocacy Day brings approximately 30 families from the nation’s top children’s hospitals to Washington each summer. While there, families educate members of Congress and the media about the quality health care that all children and families need and to address critical medical and health care concerns for children specifically in their home state.

Our daughter Claire was born six weeks premature …Continue reading →

How I received special treatment from Donald Driver and the Packers

Donald Driver

Jordan Miller with Donald Driver

I am so happy that Children’s Hospital of Wisconsin gave me the opportunity to meet Donald Driver and other Packers players earlier this month at the Donald Driver Charity Softball Game. It was truly the experience of a lifetime. I will never forget it.

I was picked because I go to Children’s Hospital of Wisconsin often because I have type 1 diabetes. I was diagnosed when I was 4 years old. If I’d never been diagnosed, I never would have been able …Continue reading →

Our precious daughter Kendra

Kendra McGarry

Kendra McGarry

Our fourth daughter, Kendra, was born on September 29, 2003. My husband and I were very blessed to bring home another beautiful little girl. Kendra had a few minor issues right after she was born. She was sick a few times, but we were not overly worried about any major medical issues. Our oldest had been sick a few times when she was an infant, but I learned she was much better if I stopped nursing her and changed to formula.

We tried this for Kendra and it seemed to help for a little while. Unfortunately, she continued to projectile vomit. Soon after, she was admitted to the local hospital for a test to find out what was going on. We learned Kendra’s urine was going the wrong direction. If this hadn’t been detected, Kendra could have ended …Continue reading →

Abdominal migraines: Dr. Li to the rescue

Carmen

Carmen responded immediately to a cost-effective prescription drug used to control cyclical vomiting.

“It’s the stomach flu” I said into the telephone receiver when I called Carmen’s school to inform them of her Thursday absence. “She should be feeling better tomorrow.”

“Great!” I thought to myself …. “how am I going to keep the rest of the family from contracting the bug?” I wiped down the bathroom with disinfectant wipes in hopes of banishing the 24-hour virus from our home. Little did I know this was just the start of our journey with Children’s Hospital of Wisconsin and a brilliant man named Dr. Li.

Looking back at that first day of illness, I remember Carmen complaining of an upset stomach in the weeks prior to her vomiting. It was nothing to be concerned about at the time … she was able to go to …Continue reading →

How Children’s Hospital of Wisconsin saved my life

Due to the many wondrous talents and skills by Children’s Hospital of Wisconsin physicians and nurses, I am alive today, and I will continue to live day after day after day. I have not been to every clinic and specialist (knock on wood, please), but I’ve been to quite a few over the last almost seventeen years of my life. From orthopedics to ENT to pulmonary functions to the Herma Heart Center, I’ve been down many hallways in the hospital.

What is especially promising and a relief to know is that my cardiologist, Dr. Earing, not only takes care of kids, but also has an adult clinic. This guarantees a knowledgeable …Continue reading →

A delicate balance for my beautiful daughter

Mo and Kate Jurgens

Mo and Kate Jurgens

My daughter Maureen (Mo) has Loeys-Dietz Syndrome, a connective tissue disease similar to Marfan syndrome. Loeys-Dietz syndrome is complicated. It affects the connective tissue that runs throughout the body—organs, muscles, and blood vessels. You name it. It’s present. When the tissue is weakened and defective, it is bound to wear down, be stretched to its limits and sometimes break. A major issue for Loeys-Dietz patients is they develop aneurysms throughout the body along with having many issues with the joints and other soft tissues.

Mo was born in 1995. Loeys-Dietz syndrome was not discovered until 2005. She has made many trips to Children’s Hospital of Wisconsin since she was born, visiting a number of clinics including orthopedics, ENT and neurology. Her first visit to …Continue reading →

Never stop fighting: A Herma Heart Center Hero

Callan

Callan is the 2012 Herma Heart Center Hero.

At 1-month-old, Callan was diagnosed with pulmonary atresia, a congenital heart condition that makes it difficult for blood to flow to the lungs. His doctors in Madison gave him a dismal prognosis, but his parents refused to give up hope. They reached out to the Herma Heart Center team at Children’s Hospital of Wisconsin in Milwaukee as a last resort for treatment options that might save Callan’s life.

Within a few hours, Callan was rushed to the Herma Heart Center, where physicians recommended a series of three open-heart surgeries. The surgeries took place over several months, and Callan had his ups and …Continue reading →

How child abuse changed the lives of Marge and Chip

I hear a lot of heartbreaking stories about child abuse. You might think this would make my job difficult, and sometimes it does. But people often share their stories because they’re proud of the lives they lead now and who they’ve become. They believe strongly in the important work Children’s Hospital of Wisconsin does through child abuse prevention and intervention programs.

One such couple, Marge and Chip, wanted me to share their stories with you. …Continue reading →

I am the second oldest of 16 kids, and we were all abused

If my mother had gotten help, today I would be one of 16 emotionally and physically happy adults. But that’s not the case.

If my mother had gotten help, today 21 grandkids wouldn’t have to be constantly watched to make sure they don’t face the same issues. But that’s not the case.

I’m often asked if I would change the way I grew up. You’d think I would, but that’s not the case. I wouldn’t, because now I’m happy with who I am. Now I find myself with a unique …Continue reading →

With Dr. Rohloff’s help, we discovered how special our daughter really is

Julie, Morgan, McKenna and Kenneth Perkins

Julie, Morgan, McKenna and Kenneth Perkins

When you are expecting a baby, there are so many emotions that go along with the joyous occasion. From the start, you are asked if the baby is a boy or a girl, but all you really are hoping and praying for is a healthy baby. We experienced some challenges when our oldest daughter was born seven years ago. My pregnancy was uneventful until delivery. Morgan was born weighing less than 4 pounds at full term, and our dreams shattered. We were scared for our daughter …Continue reading →