Learn how our Family Resource Center offers support for patient families

Learn how our Family Resource Center offers support for patient familiesEach year, we welcome more than 20,000 patients and their family members into the Daniel M. Soref Family Resource Center at Children’s Hospital of Wisconsin.

They come to us for a variety of reasons. Some need to use our computers; others want to check out a library book, DVD, video game or tablet. We also have many families who turn to the Family Resource Center to read and learn more about their child’s medical condition, …Continue reading →

How and when to advocate for your child with special health care needs

When my daughter was born, 19 years ago, she was whisked off to the Neonatal Intensive Care Unit at Children’s Hospital due to concerning respiratory and digestive symptoms.  We quickly learned that she had many special health care needs that would require us to learn some new parenting skills.  I was told “You’ll have to speak for your daughter as she will not be able to speak up for herself.”  My response was, “I don’t want to!”

Advocating was not something that I had planned to due when I read the baby books during my pregnancy.  While I learned these skills because of Emily’s special needs, any …Continue reading →