Our son Leo told us he had a headache three days in a row upon waking up. My husband, a family practice physician, told me that children don’t have headaches and on day three, had Leo go for a CT scan. Our world turned around when we saw a tumor that was one-third the size of the back of his brain. It needed to be taken out immediately.
Sept. 2, 2009, was when our nightmare began. Leo underwent a seven-hour surgery. The surgeon came out after just a few hours to tell us that the frozen section of Leo’s tumor revealed that he had medulloblastoma. This type of brain tumor only affects 500 children per year. Our Leo had gone from a healthy boy starting school to a boy who could no longer turn over in bed due to weakness and lack of coordination caused by the tumor.