Can heart surgery affect a child’s development? — 1 Comment

  1. Hiya i was just reading up on the post and it was very helpfull my daughter has hlhs, 3 holes in the heart , unbalanced avsd, faliure to thrive , severe reflux disease, and a few more complications she is fed via peg-j, and her condition wasnt diagnosed untill 4 months of age.
    She doesnt eat orally , she gets very breathless and finds it hard to walk , she has been put behind a long time and is still like a 12mnth old baby i was just wondering what others views where of late diagnosing and how others cope with the daily strain and worry,
    What are peoples views on coping and planning on the future and decisions on whats best for a 4 yr old hlhs baby x thanks x