Honoring Alyssa’s spirit by supporting Children’s Hospital of Wisconsin

With four healthy boys running around we never gave a second thought to Children’s Hospital of Wisconsin. Then our fifth child and only girl, Alyssa, came along. She brightened our world in countless ways. Not long after her birth, it became clear that Alyssa had some unique health issues. Through her, we discovered how special Children’s Hospital is and how fortunate we are to have it in our backyard.

Alyssa was born with clubfeet in September 1988. By the time she was 6 months old, she was diagnosed with Marfan syndrome, a genetic connective tissue disorder that affects the heart, aorta, eyes and skeletal system. Before celebrating her first birthday, she underwent heart surgery.

During the next 15 years, we spent a great deal of time at Children’s Hospital, where Alyssa had numerous surgeries and treatments. The doctors, nurses and staff knew her and would welcome her as we walked the hallways. Children’s Hospital was a comforting place for her; a second home of sorts. The doctors and staff were like family and helped us navigate through new and sometimes scary territory.

Alyssa passed away at age 16 from complications related to Loeys-Dietz syndrome, a connective tissue disorder that was first identified that same year. Loeys-Dietz is similar to Marfan’s syndrome.

Rally for Aly

Briggs & Al’s Run & Walk for Children’s Hospital was important to Alyssa. She was a Children’s Champion. There were some years when she was too weak to walk, but she was there sporting her infectious smile. Happily, there were a few years she walked and was proud of herself for making it to the finishline.

It is important that we carry on the tradition of participating to honor Alyssa and support the institution that provided her with exceptional care. In 2005, we created Rally for Aly, a team of loving family and friends who run or walk with purpose and motivation. Through the years, Rally for Aly has raised nearly $33,000 and has become one of the largest Briggs & Al’s community teams.

Rally for Aly team

The Rally for Aly team

Each year we strive to have more team members and raise more money because we know the impact. We raise pledges through the donation website, but have found other ways to raise money. Generous family and friends have helped organize rummage sales, raffles, silent auctions and fundraising parties to benefit our team. We are extremely proud of the work we have done and know Alyssa would be, too.

We invite you to join us, Saturday, Sept. 15, whether it is on our team or another, because the steps you take in Briggs & Al’s Run & Walk have a lasting impact. I encourage you to register today at alsrun.com.

~ Lynn Pape, guest blogger and mother of Alyssa

Comments

Honoring Alyssa’s spirit by supporting Children’s Hospital of Wisconsin — 4 Comments

  1. Very touching and heartwarming! She was a very special young lady. It is our privilege to have known Alyssa and to be a part of the Rally for Aly team.

  2. We are very proud and happy that we have 144 participants signed up for our community team. Our largest team so far. The “Rally for Aly” logo will be seen on many shirts on September 15th. Honoring & Remembering Alyssa and her short but remarkable life. Thank you!!!

  3. Thanks for sharing, Lynn, and thanks for continuing to carry on the tradition on behalf of Alyssa. Many families have received the benefit of your loving and gracious support to Children’s Hospital of Wisconsin. Keep up the great work, team, it is truly appreciated.

  4. Lynn, I am so sorry we missed THE event this year. I feel honored to be a part of your family and hope that in the years to come the Griffith family will join the Papes in honoring Alyssa and participate in this wonderful event.