A delicate balance for my beautiful daughter — 12 Comments

  1. Pingback: How Children’s Hospital of Wisconsin saved my life - Children's Hospital of Wisconsin Blog

  2. We have been there so many times with our son Daniel. Some how you find the strength to get through another one. The hail Mary’s were a great comfort to us as well.

  3. It’s always good to hear from other parents who have been there, literally and figuratively. Thanks for sharing. And, never underestimate the power of prayer, especially Hail Marys.

  4. Kate,
    Wow,very powerful and moving. Mo sounds like an extraordinary girl,and I already know she has a fabulous mother. Wish u/we lived closer

  5. Lovely post and I love the excerpt from your book. Had to take a moment to wipe the tears from my eyes. I look forward to reading the whole thing some day!

  6. WHEN are you publishing this? You have been working on it as long as I can remember! I remember the first time I saw Mo, screaming her head off in the 4th floor nursery, that later became our office. I remember thinking, Oh No, she has a cleft palate. Little did you know what the journey would be. I am n tears reading this, and remembering all you and your family have been through, then looking at the beautiful talented young lady that screaming baby has become! Hugs and prayers to all of you, let me know when and where the book signing will be!

  7. What a beautiful excerpt, Kate. I know only too well what you felt that day. As I watched Maureen being confirmed tonight, I remembered how lucky we are that she was present to receive this sacrament! God bless!

  8. Thanks Susie for your comments. She is one extraordinary girl:)

    Julie thank you for your never ending support. We always know we can count on you.

    Helen…this is proof that I actually have written and not just spoken about it. You remain dear to us even if it has been forever since we have connected. I would’ve been lost without you in those first days of trying to figure out how to nurse Mo, not to mention being able to share an office all those years together. And don’t worry when a book signing becomes a reality I’ll make sure to let you know.

    Kathie, thank you for your remarks. You know as well as I do from your extended CHW family that events such as Baptisms, Anointings and Confirmations are made even that much more moving after such a journey.

  9. Very encouraging! Good job CHP, mom & Mo!!
    Our son was born with LDS and will have surgery #5 in August. He will be one year old this October. We are amazed with his strength everyday. Maybe we will meet at conference.

  10. Julie thanks so much for your comment. Can’t wait to meet you. There will be a few families coming form WI so we’ll have to meet up at some point. Please feel free to let me know how I can help.

  11. Kate,
    Having an extremely rare disorder myself and being a adult (29) and having had dozens of surgeries (18 in the past year alone for shunt revisions, replacements, infections and spine surgeries + a 2nd shunt placement) your book excerpt is touching and especially heartfelt. I also know how you feel about the heart center and Dr.E – ive been seeing him since one of his first pts and was who finally dx’ed me and very grateful.
    God Bless to Mo in her journeys ahead – I hope to find your book when it is published at some point,


  12. Kate, as I read this, I couldn’t keep from crying, even knowing that Mo emerges from this surgical procedure! You are a gifted writer, loving mother, amazing friend to many, and an incredibly strong and brave woman! I am blessed to know you – only wishing that I knew you better!