Weiss family thanks PICU for getting daughter through rare disease

The Weiss family

The Weiss family

In 2007, our daughter Erica began feeling sick. Her condition worsened quickly from minor to severe, so we decided to have her seen in the Emergency Department at Children’s Hospital of Wisconsin. Erica immediately was admitted with suspected pneumonia, but over the next 24 hours Erica’s health continued to decline.

As the mystery of Erica’s illness started to unfold, the staff transferred Erica to the Pediatric Intensive Care Unit. They reassured us they were going to take care of her. While the outlook for Erica was overwhelming, the doctor was very honest and realistic about both possible good and bad outcomes. We then said our goodbyes and left her in the extremely capable hands of the staff of the PICU.

Over the next six hours, with dozens of family and friends arriving, both the social worker and chaplain offered tremendous support to all of us. They sat and prayed with us, held our hands, comforted us, made phone calls for us and helped us remain positive. They even stayed hours past their shift to make sure our needs were met.

Within 48 hours, after consulting with numerous doctors, including specialists from Cleveland, Erica was diagnosed with Takayasu Arteritis, a very rare disease that affects the aorta.

During our month-long stay at Children’s Hospital, we saw doctors and nurses cheering with our highs and tearing with our lows. They gave us the support we so desperately needed and we were truly amazed at their dedication. Erica still comes to Children’s Hospital for follow-up visits.

That is why our family is attending the Children’s Hospital of Wisconsin Pro-Am Fore Kids. In addition to the Pro-Am Tournament on Monday, July 13, at Brown Deer Golf Course, festivities also include the “Imagine the Possibilities” dinner Saturday, July 18, at the Harley-Davidson Museum.

Check out their e-vite. Please come support Children’s Hospital. Words cannot express our gratitude, and we know that we are blessed to have such a wonderful hospital in our community.

~ Judy Weiss, guest blogger

Comments

Weiss family thanks PICU for getting daughter through rare disease — 2 Comments

  1. Dear Weiss family, many thousands of miles lay between us, but I have become a part of your family over the last couple of years with Erica’s illness. I eagerly wait to read your amazing informative reports as you receive them from Erica’s checkups and specialists visits. Your keeness on being so available to support any and everything in relation to the Childrens Hospital is just so wonderful, I know that so many have also been touched by your incredible strength and we all commend this wisdom, as strength of spirit and strength of prayer will always be with you. Best wishes for a great supportive night Saturday, will be thinking of you all. Mary Kypriadis (Australia)

  2. Erica is a shining example of the work performed at Children’s Hospital of Wisconsin. It is comforting to know that such a wonderful facility can be accessed for people throughout Wisconsin, northern Illinois and Minnesota. Knowing that first hand, my husband and I were honored to attend the “Imagine the Possibilities” dinner with our family on Saturday. Our parents truly spoke from the heart about their experience with the PICU staff. Mom, Dad and Erica did a terrific job speaking to the philanthropic crowd, even adding enlightment with a few jokes. The coordination of care and the individual knowledge and expertise they bring to the table, was and is still, truly amazing. We were humbled to offer support to a fascinating facility and to our family, as well.